It’s
here. May is Mental Illness Awareness Month. Which begs the question,
how aware of mental illness are we if we have to dedicate an entire
month to becoming aware of it?
Many
with mental illness and their family members are aware of one thing —
walking alone.
I
walked alone with my illness for more than 12 years. I worked with a
plethora of doctors, counselors, nurses, and caseworkers. People say
I am one of the lucky ones because I had treatment, I guess they’re
right. But while enduring 12 years of failed treatments, I felt
I walked alone.
I
was fortunate to have family members willing to love me, despite my
illness. However, even though I had family, church members, leaders
and what others might have perceived as a host of support, I felt
alone.
Tried
as others might, they just didn’t understand. They weren’t
okay with my illness and the behavior it caused. (I’m not
saying it was all out of my control, but you’d be startled how
your brain thinks when your chemicals are truly out of whack.) I just
couldn’t seem to find the magic wand to instantaneously cure
me.
Consequently,
I felt increasingly isolated. Even amongst family and friends, I felt
utterly alone — a shattered sliver of who I’d once been —
slowly slipping into silence. People heard me, but they didn’t
listen. People looked, but they could not see.
This
past week I had the opportunity to speak with a group of parents,
loved ones and people with mental illness. In my effort to provide
hope, I must have painted my life in a way that didn’t go into
the raw nitty-gritty despair.
Sure,
I shared with them some struggles. I even shared some of my dark
times. But I guess I shared it in a way so polished that it glossed
over the anguish I and so many people with mental illness (and their
loved ones) experience.
For
several members in the crowd, it must have appeared like the young
woman standing before them in a business suit never even had mental
illness. At the end of the presentation, a father spoke up saying,
“Well, you are where you are because you just weren’t as
sick as my son.”
His
comment saddened me. It bothered me not because I felt the road I’d
trod was any more difficult than that of his son, it bothered me
because I realized this father felt alone in his search for a better
life for his son. He’d lost the hope that his son could ever
become healthy. He’s lost the hope of seeing his son live a
“normal” life. He’d lost hope; he felt
alone.
Truth
be told, if my parents had sat at a similar meeting only five years
ago, it would have been my father’s eyes brimming with tears
who told the person that his daughter was a much graver case. I was.
What
changed? I honestly don’t know how it started. But after 12
years I’d become so fed up with my illness-riddled brain and
living like a ping-pong ball bouncing in and out of institutions,
group homes, hospitals and crisis houses that I was angry. To say I
lived an unstable life is grossly understated.
My
inpatient doctor had long ago given up on me. Many of the hospital’s
staff had also given up, often referring to me as a “girl
racking up frequent flier miles.” During my heaps of spare
time, their disparaging comments rattled around in my drug-dulled yet
frightenly noisy head. I was sick of it. I’d had enough. I
decided to defy them all. I’d show them. I’d do what they
couldn’t. I’d fix me.
I
determined my first priority was leaving that group home. Doing so
meant defying nearly all my providers, family members, and some of my
friends who couldn’t see me functioning independently. After
all, I hadn’t in more than 12 years.
I
discovered my exit strategy, renting a room with a sweet Angel of
Mercy for next to nothing. Much to the dismay of almost
everyone I knew, I moved. Doing so required getting a job. I did.
Soon
thereafter, I came across the National Alliance on Mental Illness’
(NAMI) Peer-to-Peer class taught by trained Peer Support Specialists.
For the first time in my entire life, I met people with my illness
who lived independently. I brainstormed with them, learned a bucket
load of “Wellness Tools” and started forward on the
recovery Journey.
Yes,
I still had symptoms, but gradually through my diligent use of the
new found tools and medications, I became more in control of
that which used to ravage my life and mind.
Within
months of beginning to think more clearly, I decided that I needed to
go back to school because some of the treatments destroyed my ability
to remember my college education or work experience. I discovered
stipends and grants specifically set aside for people like me. I
found funding for the retraining of my cob-webbed mind.
After
much hard work and determination, I graduated with my masters and
found a job where I can help others desperately seeking a ticket onto
the Recovery Rail.
Why
do I share this with you? I want you to know mental illness is real.
There are no fairy godmothers, no stars to wish upon, no
magic-lamp-genies with spontaneous healing. Anyone who says
differently is selling something much like every fairy tails’
evil villain, promising lasting happiness with a catch.
More
important than raising awareness of mental illness, we need to become
aware of Recovery. For what seemed like eons, I felt alone treading
the road of mental illness. I never met people living with it
successfully because I didn’t know where to look.
If
nothing else, look at me and find hope in knowing that anything is
possible. With proper support, recovery isn’t just possible —
it’s probable. There is no deadline on potential.
This
past weekend I participated in a 5k NAMI Walk for mental illness. It
wasn’t a celebrity-studded, glamorous event, with television
channels falling over themselves to cover it. But you know what, it
was awesome. Thousands participated. I stood in the crowd, reveling
in the knowledge that I am not alone.
I
walked with a host of others carrying banners, wearing t-shirts
bearing the faces of loved ones, raising money to help educate people
like me about how to take their lives back, provide classes to family
members and educate the public through presentations on mental
illness. I walked with a team I created called Recovering Hope and
walked with supportive friends.
At
every turn, additional friends cheered me on. I wish everyone in my
situation and that of my family had an opportunity to participate in
a NAMI Walk. It felt like fueling an emotional gas tank with a high
grade of love and support. I didn’t feel alone.
Team Recovering Hope at San Diego’s NAMI Walk on May 3,
2014 (I’m the one wearing the number 6327). Our team
raised $1,840 to help people with mental illness and their families.
Photo by David Hancock. Used by permission.
Many
of you will argue that Heavenly Father never leaves us alone.
However, walking with a chemically imbalanced brain robs one of the
ability to feel the comfort and peace of the spirit, regardless of
what one does to bring the spirit into her life.
To
circumvent that dilemma, it felt like Heavenly Father had
orchestrated the NAMI Walk to prove to me that He is always at my
side, even when I cannot feel it. I am not alone in this fight and
neither are you. Promise.
Sarah Price Hancock, a graduate of San Diego State University's rehabilitation
counseling Masters of Science program with a certificate psychiatric
rehabilitation.
Having embarked on her own journey with a mental health diagnosis, she is
passionate about psychiatric recovery. She enjoys working as a lector
for universities, training upcoming mental health professionals.
Sarah also enjoys sharing insights with peers working to strengthen
their "recovery toolbox." With proper support, Sarah
knows psychiatric recovery isn’t just possible — it’s
probable.
Born and raised in San Diego, California, Sarah served a Spanish-speaking
and ASL mission for the LDS Church in the Texas Dallas Mission. She
was graduated from Ricks College and BYU. Sarah currently resides in
San Diego and inherited four amazing children when she married the
man of her dreams in 2011. She loves writing, public speaking,
ceramics, jewelry-making and kite-flying — not necessarily in
that order.