Depression
effects autobiographical memory. “Sixty percent of patients
were found to have deficits in autobiographical memory
for incidents in their earlier life; these deficits were associated
with significant impairments in personal semantic memory
of facts from their past life”
(www.tandfonline.com/doi/abs/10.1076/1380-3395(200002)22:1;1-8;FT125).
What the heck is semantic memory? Basically it’s any memory
which is attached to a symbol or meaning. For example, what does a
red rose mean to you?
While
many people who have depression experience memory loss, this column
is going to talk specifically about my memory loss resulting from
extensive Electroconvulsive Therapy (ECT) also known as shock
treatments. Before I go into details, I also need to impress upon you
that ECT is a very controversial treatment. I believe much of the
controversy stems from the lack of regulations associated with
administering ECT. While ECT is very effective for some people, it is
very ineffective for others. Truth be told, even the most recent
research cannot explain why ECT does or doesn’t work. Lack of
regulatory measures allows each doctor to administer ECT using their
own methods. There are some doctors who are very skilled and apply
current research, using modern machines. Mine did not. I need to
impress upon you that my experience is unique in many aspects because
I’ve had more than 100 ECT treatments. I do not write this
column to dissuade you from chosing this method of treatment for
yourself or a loved one, I write it simply to share my experience
because although it is uniquely mine, in many ways there is a common
thread woven through the experiences of others treated with ECT in
the past 20 years. If you would like to read more about memory loss
and the rehabilitation required for people to improve quality of life
after ECT, please see this link: www.ECTanswers.blogspot.com
First
you have to understand the magnitude of ECT treatments I've had. Not
only have I had more than 100, I had them from three times a week to
every other week, depending on how well I was doing.
Kitty
Dukakis had ECT. It affected her differently. I heard one interview
where she said ECT was the best thing that ever happened to her and
that the only thing she'd forgotten was a trip to Europe. This is
awesome, for her. She discusses her experience with ECT in a book
entitled “Shock”
(http://www.amazon.com/Shock-Kitty-Dukakis/dp/1583332839).
Truthfully, I'm kinda mad at her for saying that because it discounts
the major memory loss experienced by others. It also allows people to
rely on the judgment of their doctor without doing their own
research. In doing so, many people believe the memory loss will be
minimal. For many it is. I am not one of the many.
I
can say that I've forgotten probably 99.9999% of 1993-2009. In fact,
if there were one standardized way of testing autobiographical memory
(which as of today’s publication, there isn’t), I think
the examiner would testify to the fact that I’ve forgotten 90%
of my life from 1975-1993.
Let's
think about this a little harder . . . all emotions and attachments
we feel are generated by experiences we've had. So if you can't
remember the experiences, you can't attach them to the emotion which
results in feeling detached from everyone because you can't remember
any experience once shared. Now that you understand this concept, you
can better understand why I would be willing to wager that all of the
emotional attachment to anything or anyone I experienced during that
period is completely gone. The only exception is with people I
connected with on a very regular basis. Even still, I can feel
emotions about these people, I just can’t always identify why.
Everything
I know about what I experienced during my life are only what I have
gathered from reading and rereading my own journals, flipping through
photo albums and recognizing my face in a sea of individuals I
couldn’t identify and retelling stories people have told me. I
can tell you facts. I cannot tell you or re-feel the emotions. Weird?
Yes.
I
can't remember people's faces, personalities or any of that. I find
this strange because I am really a people person and to have
forgotten what I love most about life is really strange. It's almost
like I've mentally experienced a time warp because nothing registers
and because there isn't even a shadow or hint of the life I’ve
lived. It's like it never happened.
I
quit ECT against medical advice in July 1, 2009. Although it’s
been more than a year, I cannot say my memory loss is permanent.
However, I had ECT in 2002-2004, and my journal records that I still
had not begun remembering my previous college experience,
relationships or training by the time I began to have ECT again in
the fall of 2007.
For
a long time, I allowed my memory loss to really make me mad. I think
it was because like many of you, I learned that “Elder
Bruce R. McConkie of the Quorum of the Twelve Apostles
(1915–1985) explained that “life never was intended to be
easy. It is a probationary
estate in which we are tested physically, mentally, morally, and
spiritually.”2We
groan when someone tells us that we will learn from the trials we
experience. In my family we’d moan over having to go through
something again and again until we learned from our experience and
could move on. Here I am with no memory, horrified that I would have
to go through my entire 37 years of trials again so that I could
relearn what I’d forgotten! “No, the thought makes reason
stare!” (Snow, Eliza R., O
My Father,
Hymns of the Church of Jesus Christ of Latter-day Saints, 1985, p.
292)
The
idea terrified me! So I started to look for ways I could see my
memory loss from a different and more positive perspective. After
years of desperately searching, I finally found it.
I
now better understand the atonement. As a child I could never
understand how the lord could forget my sins. I mean, when I sinned,
I didn’t have to be brought before God to “have a bright
recollection
of all [my] guilt”
(Alma: 11:43). I couldn’t fathom how if I truly and sincerely
repented of my wrong doings my Savior would “remember them no
more” (D&C 58:42). Growing up I could remember all the good
and bad I’d done with such detail that the concept of
forgetting something just didn’t register. And yet the Lord
promises us complete forgiveness. Not just forgiveness, but He
promises us he will not even remember the bad we did. Isaiah talks
about this principle when he says in chapter one, “Come now,
and let us reason
together, saith the Lord:
though your sins
be as scarlet, they shall be as white
as snow;
though they be red like crimson, they shall be as wool” (Isaiah
1: 18) . How is that even possible? Honestly, I had no clue. No clue
until I experienced ECT. Now I can honestly testify that when the
Lord says He’ll “remember [our sins] no more,” I
believe Him. I can testify that when you have truly repented of
something you will “receive
remission
of [your] sins, and rejoice with exceedingly great joy” (Mosiah
3:13). The Father will truly erase them from His mind. There
won’t even be a hint or shadow of whatever wrong you’ve
done. God truly no longer remembers it.
I
share this with you in hopes that doing so can bring you peace. Yes,
you can still remember the good and ill you’ve done. You can
remember because you need to learn from it. But don’t allow
your learning to impede your journey. Let go of those things for
which you’ve truly repented. Move forward as though enjoying
the veil of innocence, having faith that although you can
remember, Heavenly Father doesn’t. Of this I testify in the
name of our Savior Jesus Christ, amen.
Sarah Price Hancock, a graduate of San Diego State University's rehabilitation
counseling Masters of Science program with a certificate psychiatric
rehabilitation.
Having embarked on her own journey with a mental health diagnosis, she is
passionate about psychiatric recovery. She enjoys working as a lector
for universities, training upcoming mental health professionals.
Sarah also enjoys sharing insights with peers working to strengthen
their "recovery toolbox." With proper support, Sarah
knows psychiatric recovery isn’t just possible — it’s
probable.
Born and raised in San Diego, California, Sarah served a Spanish-speaking
and ASL mission for the LDS Church in the Texas Dallas Mission. She
was graduated from Ricks College and BYU. Sarah currently resides in
San Diego and inherited four amazing children when she married the
man of her dreams in 2011. She loves writing, public speaking,
ceramics, jewelry-making and kite-flying — not necessarily in
that order.