Identity and Mental Illness: Not, What I Am, but Who I Am
by Sarah Hancock
The
other day I went to a service project as the passenger in my friend’s
car. When we pulled into the parking lot, a baby blue, vintage
Volkswagen bug pulled beside us and parked. My friend turned to me
and said, “That’s my brother. He’s schizophrenic.”
I stared at her for a moment, collecting my wits, and asked, “What’s
his name?”
Gee.
How many of us have done that? Some of you may ask, what? Done what?
Introduced someone as their diagnosis. Come on now, we can all
sheepishly admit we have. So this is my promise to you: I won't
do it any more.
I
share this incident in an effort to plead with you to reevaluate how
you interact with and think about people who have mental illness. For
those who have mental illness, I share this as a plea to you to
reevaluate how you think about yourself.
Would
you ever introduce a friend to your “cancerous sister”?
Would you introduce your coworker to the diabetic? Nope. Or at least,
I hope not. Don’t you think it’s inappropriate to
disclose someone’s medical history? So why do it with mental
illness? Why the double standard? Yet people do it all the time.
Suddenly gossip morphs into necessary knowledge. A little bit of the
natural man coming to the surface? Okay. Maybe it’s just human
nature to fill in the details, but what details are really necessary?
There
are three primary reasons I think that you shouldn’t refer to
someone as their diagnosis or even tell others about the diagnosis,
especially when mental health is involved. First, it doesn’t
allow a new person the opportunity to meet a person without the
looming negative stigma associated with mental illness. Second, the
more a person with mental illness is referred to by their illness,
the more people treat them as ill. Third, when people are constantly
referred to as their diagnosis, it leads them to believe all they are
is
the diagnosis.
When
I was first diagnosed and struggling through the depths of my
symptoms, I often sat down at meetings where people spontaneously
stood up and moved. At first I honestly thought they had to make a
last minute trip to the restroom. Perhaps many of them did.
But
I will never forget the day when I sat down next to a young woman who
got up and moved to the row behind me. When questioned by her new
neighbor about the sudden spontaneous space shuffle, the young women
loudly whispered, “I can’t sit next to her. Didn’t
you know she’s schizophrenic and gets shock treatments?”
Tears
filled my eyes. I sat there waiting for the meeting to start while
staring at the teary, shimmering pattern on my skirt, all while
wondering if that’s all they saw in me. As time passed, I
wondered if that was all everyone
saw in me.
There
were many dark and dreary moments where that’s all I saw in
myself. Lost was the girl who loved to write and sing at the top of
her lungs to the car radio. Lost was the woman who’d been a
college leadership trainer, camp counselor, editor and oral
historian. Lost was the trilingual returned missionary.
Lost
was the girl who loved expressing herself with ceramics, the one who
frequently enjoyed laughing so hard her face and stomach hurt. Lost
was the girl who planned the parties and group dates. Lost, the girl
who excelled academically. Sometimes I wonder if I would have lost
sight of all of those things had more people seen me for those
qualities, rather than seen me as a scary mentally ill person.
You
may think my perspective is skewed. Surely my illness affected how I
perceived the reaction of others. Maybe it was all in my mind. A
figment of my imagination. A result of the illness. I wish it were.
I’ve
been to social activities where people I didn’t even know
actually asked me what it was like to have shock treatments and to
hear voices. Their tone made me feel like some sort of freak show.
Often
I discussed it with a trusted friend, asking her if she’d heard
it. Reality testing. She always did. There were times in my life
where it got me down; now I’ve gotten used to it. When a person
asks me such questions one-on-one, truly wanting to learn, it’s
a decidedly different circumstance — one that I welcome.
I
guess my question is: When you know someone has a mental illness, do
you further perpetuate the negative stigma by referring to them as
their illness? Or do you refer to them by their characteristics,
qualities and talents? If the only thing you can see is the illness,
you need to look deeper.
If
you have been diagnosed with a mental illness and it’s all you
can see or who you’ve become, take a step back and remember.
Remember who you once were, what you liked to do, where you liked to
go. Revisit a favorite thing about yourself.
Take
a moment to enjoy an old talent you’ve shelved while struggling
to take care of your symptoms. Get out of your head and enjoy
something you hold dear. I know it may feel awkward at first since
you haven’t done it in so long, but those lost qualities and
talents are still a very important part of who you really are. You
are you; you are not your diagnosis!
If
you love, serve, or work with someone who has a diagnosis, take a
moment to evaluate how you talk about him with others. Work to
recognize every aspect of his personality.
Work
to point out his strengths. Work to focus on the fact that she is
child of a loving Heavenly Father who allowed her to have this
illness not as a punishment but rather as witness of an abiding
confidence God has in her. He knows all things, including her true,
inner strength and potential. Remind your loved one of this truth.
One
wise woman (not me!) diagnosed with a mental illness explained it
quite simply by saying, “It is something that I live with, that
I attempt to circumnavigate around, but it is not Who I Am.”
Please,
stand with me and take the pledge. We will stand together and
recognize people for who they truly are, sons and daughters of a
living and loving God.
Sarah Price Hancock, a graduate of San Diego State University's rehabilitation
counseling Masters of Science program with a certificate psychiatric
rehabilitation.
Having embarked on her own journey with a mental health diagnosis, she is
passionate about psychiatric recovery. She enjoys working as a lector
for universities, training upcoming mental health professionals.
Sarah also enjoys sharing insights with peers working to strengthen
their "recovery toolbox." With proper support, Sarah
knows psychiatric recovery isn’t just possible — it’s
probable.
Born and raised in San Diego, California, Sarah served a Spanish-speaking
and ASL mission for the LDS Church in the Texas Dallas Mission. She
was graduated from Ricks College and BYU. Sarah currently resides in
San Diego and inherited four amazing children when she married the
man of her dreams in 2011. She loves writing, public speaking,
ceramics, jewelry-making and kite-flying — not necessarily in
that order.