The
list of tests scribbled on the white board was daunting: IV blood
tests; nasal swab for influenza; throat culture for strep; catheter
for urine analysis; chest X-ray; head CT scan; neck CT scan; and
spinal tap.
Just
an hour or two earlier, my phone call to the after-hours nurse
resulted in the command to call 911 immediately. An ambulance ride
later, my husband and I sat in a hospital emergency room with our
very sick 2-year-old, who suffered a high fever, severe neck
stiffness and pain, and extreme lethargy. Such words as meningitis
and West Nile Virus had surfaced.
Shortly
after the doctor wrote down these tests and stepped out of the room,
our nurse walked back into the room. She spoke softly, and calmly.
“We
aren’t having this conversation, and I could be putting my job
on the line,” she said (or didn’t say). “I sat out
in the hall a moment, deciding if I should tell you this. But you
have a beautiful little boy and I want him to get the best care.”
“Oh,
good land,” I thought. “What IS it?”
She
leveled her gaze at us. Oh,
here it comes. I braced myself.
“You
have choices,” she said.
Again,
that gaze.
“Do
you understand what I’m telling you?”
“No,
I’m afraid not.”
So
she spelled it out. She told us she had worked for years in one of
the top pediatric hospitals in the nation, which was in our metro
area, and that the hospital we were at, while excellent at providing
care for adults, was not equipped to care for children on such a
level. She also expressed concern at the long and invasive list of
tests, and encouraged us to work with the doctor to try to pare down
the list. And then she walked out of the room.
We
have choices.
My
husband I looked at each other. There was a discussion to be had.
As
parents, we are called on time and again to be advocates for our
children. I’ve had to do it before, and here I was again faced
with the opportunity. Sometimes we advocate for their education,
sometimes for their health care, and more.
Sometimes
it’s easy to forget that we have choices. But we do. And, it’s
our job to try to decide what is in our children’s best
interests. Without a doubt, there is a line between being rude, pushy
and difficult, and being informed, educated and inspired.
My
husband and I decided to try to work with the doctor to prioritize
the tests. When the doctor came back in the room, we calmly and
kindly expressed our concerns about the list of tests, which he
agreed was daunting. Surely, he was covering his bases, not having a
pediatric background. Since we had already done the blood work, as
well as the strep and influenza testing – all of which showed
normal results – he determined that we should start with the
neck CT scan. We felt good about this decision, and proceeded.
As
it turned out, that was the only test we needed, as the problem was
identified: Mason had a retropharyngeal abscess, a very serious
infection in a lymph node and tissue between the back of his throat
and his spinal column. Swelling from the infection could obstruct the
airway, thus rendering his situation potentially life-threatening.
Diagnosis
in hand, the doctor then determined we needed a second ambulance
transport to Children’s Hospital, where they were equipped to
care for Mason. Mason spent a total of four days in the hospital,
where he received excellent care, as well as two round-the-clock IV
antibiotics; he eventually regained his strength, fought the
infection and returned to normal. I forever will be grateful that all
of the pieces to this puzzle fell together so smoothly.
In
addition to the reminder to always be an advocate for my children, I
was reminded of a few other lessons during this time:
1. A mother’s
instinct is real. My husband and I were set to celebrate out eleventh
wedding anniversary on the day Mason become so ill, and my husband
was visibly annoyed when I announced that I would not be going out
with him that evening, because Mason was so ill. But I just knew
something was wrong, that his symptoms were outside of the range of a
“normal” illness in a child. My husband has repeatedly
thanked me since then for trusting my gut instinct and being informed
enough to know that neck stiffness in a child can be a sign of severe
problems, and has declared his restored faith in mother’s
intuition.
2. The power of prayer is
real. As Mason’s medical status became the topic of my Facebook
status updates for several days, there were many promises that
friends’ thoughts and prayers “would be with us.”
But what really struck me was one friend, who after writing that her
thoughts and prayers would be with us, added, “I promise.”
I thought of how this is such an easy phrase to throw out when
someone is going through a difficult time, but do we really take to
our knees and sincerely pray for those who need it? There is power
and comfort in knowing that others are sending to heaven your name
and your trials to be heard.
3. The need for service
is real, and we should make ourselves available to both the giving
and receiving of kind acts. Partway through Mason’s hospital
stay, one of his nurses brought in an adorable, soft, tied fleece
blanket, a bright orange fleece on one side, and a darling, colorful
monster pattern on the other (altogether fitting for my 2-year-old!).
It was a gift for him from Project Linus volunteers, and quickly
replaced the scratchy, drab hospital blankets he had been using. Even
now, nearly two weeks after he left the hospital, “monster
blankey” continues to envelop him each night as he goes to bed.
Earlier this summer, as part of our Summer of Service group, we
dedicated one of our weekly service days to tying blankets for
Project Linus. I smiled at how this act of service had for us come
full circle, not previously having a full appreciation for how much
joy a seemingly small act of service could provide. In addition, the
meals and childcare provided to us from concerned friends and family
eased mine and my husband’s burdens.
Through
this, I am so grateful for the many hands that played a part in
Mason’s journey back to health: hands that provided medical
care, hands that gave him blessings, hands that provided a variety of
acts of service. And subsequently, I am joyous that he is back in my
hands.
Melissa Howell was born and raised in the woods of northern Minnesota. She has a degree in
journalism from the University of Minnesota.
As a single 20-something, she moved to Colorado seeking an adventure. She found one, first in
landing her dream job and then in landing her dream husband; four children followed.
Upon becoming a mother, she left her career in healthcare communications to be a stay-at-home
mom, and now every day is an adventure with her husband Brian and children Connor (9), Isabel
(6), Lucas (5) and Mason (2).
In addition, she is a freelance writer and communications consultant for a variety of
organizations.
Melissa serves as Assistant director of media relations for stake public affairs and Webelos den leader