"We seldom get into trouble when we speak softly. It is only when we raise our voices that the sparks fly and tiny molehills become great mountains of contention."
This
week is a momentous week on Planet Kathy. Wednesday marks the
one-year anniversary of the day when I got released from the
rehabilitation hospital and got sent home to live a so-called normal
life.
If
I had thought a year ago that I’d still be sitting in a
wheelchair at the one-year mark, I would have been more than a
little surprised — but I shouldn’t have been. My chief
therapist, Wonder Woman, told me when I got discharged that I’d
be spending “at least a year to eighteen months” in my
wheelchair after discharge. Being the optimists that we are, both
Fluffy and I translated that to mean “up to a year.”
I
guess we should have cleaned the wax out of our ears.
Now
we’re thinking of that eighteen-month mark, but we’re
still thinking of it as up to eighteen months. Wonder Woman
never said that. Her words were “at least.” We’re
still thinking, “up to.” We are still wearing those
rose-colored glasses.
I
keep trying to do new tricks, here at the gymnasium we call home.
Today I tried to go up our stairway to the second floor. I have
not been on that floor for over a year, and I am forgetting what it
looks like. I have been doing 20-25 steps per day on a little set of
practice stairs, and my body finally thought it was ready to try the
real deal.
In
my quest to conquer this new challenge, I decided I’d do the
first five stairs up to the landing and then take a rest there.
Fluffy thought I was being a little optimistic, but he cleared off
the first five stairs and he also cleared off the wonderful leather
stool on the landing so I could sit on it and rest when I reached
that resting point.
Ha!
First
I tried my weak right leg. I got it situated on that bottom step
and then tried to get my left foot up there. I was a dismal failure.
I landed back in the wheelchair with a plop and sat there to survey
the situation. This was not going to be as easy as I had thought.
Then
I decided to start with my stronger left leg. My last physical
therapist, André, said to always start with the stronger leg
when going up and the weaker leg when going down. I decided to
listen to him for once, but it didn’t get me anywhere. In
fact, I did worse that way than I had the time before. My
stair-climbing experiment was not a success.
Twice
in the past week, friends have asked me what I do all day. I’m
sure they are not trying to be rude. The truth is, just being Kathy
takes a whole lot longer than it used to take. I don’t know
why.
Here is a typical weekday:
The first
thing I do in the morning is to sit up and have Fluffy put on the
support stockings that keep my chicken legs from becoming piano
legs. We try to do this without my screaming, although we are not
always successful. It is amazing how much sensation there can be in
paralyzed legs, and none of it is pleasant. In fact, all of it is
pretty much excruciating.
I retire to
the bathroom for my morning toiletries and to get as dressed as I’m
going to get. It is not easy to get dressed sitting down. If we
have nowhere to go that day, I get dressed in one of a large
assortment of nightgowns. One of the few real perks of life in a
wheelchair is that one gets to stay in a nightgown all day long, if
one is so inclined. Fluffy keeps me nicely dressed. He is an
excellent valet.
Then I wash
my hair in the bathroom sink. This is a messy process, although it
is debatable whether any of the water that I feel splashing on my
feet is actually water. It may be that some or even all of it is
bogus water that is imagined by my feet. The fact that the floor is
dry when I am finished generally bears this out, unless our home is
blessed with water that evaporates in five minutes.
Bathroom
duties are followed by my morning exercises, climbing steps while
Fluffy cheers me on and then lifting five-pound weights and using
stretch bands. My goal is to achieve a six-pack in the abdominal
region. This is a work in progress.
I do my work
for the Nauvoo Times. If it is cold, I have an electric
blanket wrapped around me or a space heater on the chair next to me.
The cold is not my friend. I continue working at the
computer until 1:30 or so, interrupted by Fluffy, who brings me a
small bowl of cereal and my morning pills. Fluffy is my pharmacist,
and he cheerfully doles out the 30+ pills that I take each day.
Then our
friend arrives who also serves as my brain trainer. She is coaxing
my brain to return to this world, using an assortment of exercises
that, quite frankly, turn my cognitive processes into spaghetti.
This is good for me. But by the end of an hour, I’m mentally
useless for the rest of the day.
Once my
brain is trained, we eat lunch while watching some television. I
sit in front of the television, sleeping and at least figuratively
drooling. If we have time, I often take an afternoon nap. We may
or may not have a visitor. We may or may not leave the house. We
may or may not play games. I check my email to see if any more
Nauvoo Times work needs to be done.
Dinnertime
arrives. If we aren’t eating with friends or dining out, we
watch television again and visit with each other until 9:30.
At 9:30 or
so, we watch a half-hour segment of the Great Courses. We recently
enjoyed “The History of Ancient Egypt,” which was 48
lectures. We are currently watching “Games People Play: Game
Theory in Life, Business, and Beyond,” which is only 24
lectures, but which is not so enjoyable. Until I get my brain back,
I am not smart enough for that one. Maybe I won’t be even
then.
Then we play
on our individual computers until 11 p.m. or so, catching up on our
emails, the latest news, and our friends on Facebook.
We crawl in
bed and read until midnight, when I turn out my light and go to
sleep. Fluffy follows shortly thereafter.
Yes,
we are living at a snail’s pace. But there’s nothing
wrong with a good snail.
Most
people live life in a blur, compared to the way we live it.
They watch the news. They zoom back and forth in automobiles. They
listen to music that puts them in frenetic moods. Stimuli bombard
them constantly.
We
know, because we used to live this way too, but my medical adventure
and Fluffy’s unexpected retirement from the work force have
changed our lives radically in the past year.
Nevertheless,
from our vantage point, the snail’s way of life has some
advantages. It is not altogether bad to live life from
quarter-speed, if you can manage it, which most of us can’t.
Even I couldn’t have managed it, if my body hadn’t
stopped me in my tracks and managed it for me. Now I have no choice
but to live snail-like, one precious inch at a time.
We
have learned many lessons in the past year. One of them is this: It
doesn’t matter how fast one goes; it only matters which
direction one is going. As long as I am going in the right
direction, I have an eternity to get there. And because Fluffy has
slowed down to join me on the journey, we can enjoy every sublime
moment of the adventure.
Kathryn H. Kidd has been writing fiction, nonfiction, and "anything for money" longer than
most of her readers have even been alive. She has something to say on every topic, and the
possibility that her opinions may be dead wrong has never stopped her from expressing them at
every opportunity.
A native of New Orleans, Kathy grew up in Mandeville, Louisiana. She attended Brigham
Young University as a generic Protestant, having left the Episcopal Church when she was eight
because that church didn't believe what she did. She joined The Church of Jesus Christ of
Latter-day Saints as a BYU junior, finally overcoming her natural stubbornness because she
wanted a patriarchal blessing and couldn't get one unless she was a member of the Church. She
was baptized on a Saturday and received her patriarchal blessing two days later.
She married Clark L. Kidd, who appears in her columns as "Fluffy," more than thirty-five
years ago. They are the authors of numerous LDS-related books, the most popular of which is A
Convert's Guide to Mormon Life.
A former managing editor for Meridian Magazine, Kathy moderated a weekly column ("Circle of Sisters") for Meridian until she was derailed by illness in December of 2012. However, her biggest claim to fame is that she co-authored
Lovelock with Orson Scott Card. Lovelock has been translated into Spanish and Polish, which
would be a little more gratifying than it actually is if Kathy had been referred to by her real name
and not "Kathryn Kerr" on the cover of the Polish version.
Kathy has her own website, www.planetkathy.com, where she hopes to get back to writing a weekday blog once she recovers from being dysfunctional. Her entries recount her adventures and misadventures with Fluffy, who heroically
allows himself to be used as fodder for her columns at every possible opportunity.
Kathy spent seven years as a teacher of the Young Women in her ward, until she was recently released. She has not yet gotten used to interacting with the adults, and suspects it may take another seven years. A long-time home teacher with her husband, Clark, they have home taught the same family since 1988. The two of them have been temple workers since 1995, serving in the Washington D.C. Temple.